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De 21/11 a 22/11
3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística
Um evento único para profissionais da saúde, pesquisadores, pessoas com fibrose cística, familiares, representantes de associações de assistência, estudantes da área de saúde e demais interessados no tema.
Sobre o evento
O Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística tem como objetivo ser um espaço horizontal de debates entre médicos, pesquisadores, representantes de associações de apoio, familiares e pessoas com fibrose cística, estudantes da área de saúde e interessados no tema. Sem limitação geográfica, por ser online, o evento tem como essência a inclusão: somando a competência técnica dos profissionais de saúde e estudiosos do tema com a experiência do familiar e da pessoa diagnosticada.
Em sua terceira edição, o evento abordará a importância da alfabetização sanitária no processo de empoderamento da pessoa com fibrose cística e protagonismo de sua jornada, a navegação de pacientes nos sistemas de saúde, o papel da população e sociedade médica nos espaços de participação social e advocacy, além das inovações científicas na fibrose cística.
O 3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística é uma realização do Unidos pela Vida - Instituto Brasileiro de Atenção à Fibrose Cística, com patrocínio da Jotabasso Sementes e Vertex.
Palestrantes
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Cristiano Machado Silveira
Diretor de Políticas Públicas e Advocacy do Instituto Unidos pela Vida Saiba mais
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Dr. Danylo César Correia Palmeira
MD, MSc. Presidente Sociedade Pernambucana de Infectologia 22/23 Hospital das Clínicas/UFPE Real Hospital Português Saiba mais
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Dra. Emilia Arrighi
Diretora geral da Universidade do Paciente e da Família www.universidaddepacientes.org Saiba mais
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Não perca!
De 21/11 a 22/11
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Programação
(sujeita a alterações)
21/11/22
22/11/22
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Gratuidade encerrada
14:35
14:35
Mesa 01: A jornada da pessoa com fibrose cística no Brasil
Dra. Emilia Arrighi, Dra. Marise Basso Amaral, Dra. Sandra Gioia, Leonardo Rodolfo Napeloso
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Gratuidade encerrada
14:40
14:40
Saber o que se tem pode mudar tudo: A importância da educação em saúde no desenvolvimento do protagonismo da pessoa com FIbrose Cística
Dra. Emilia Arrighi
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F0u9gqqk83gbebiqmkh6wod4c1mwf%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074316Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Df1708bfc0737c63355a02565f6af658cf63c66d2fbe059be0e2ec7479c81d845)
Gratuidade encerrada
14:55
14:55
A importância da navegação de pacientes nos sistemas de saúde
Dra. Sandra Gioia
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fx61sprkvrecyprtn6iqj81leerfh%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074316Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dc01370d774a29510fb61a3e79cf169638cfb237f2b04e5de6f61c0d983e46c3d)
Gratuidade encerrada
15:10
15:10
Quando sei o que tenho, lido melhor com a realidade: Relato de uma pessoa com fibrose cística
Leonardo Rodolfo Napeloso
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flktxzl0mftn6jxrp9xmz0f7huwhk%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074316Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D0b63e645857b1a6e9d5a1c85fdc983e82ee50e9b3742d99583250f13586a9e9f)
Gratuidade encerrada
16:10
16:10
Mesa 02: Aspectos do processo de Avaliação de Tecnologias em Saúde em Fibrose Cística
Verônica Stasiak Bednarczuk de Oliveira, Laura Murta Amaral, Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fh1i3t44m9x1km2hzpjgj1w8ju5ty%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074316Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D64dde8a3f5bab6f1678ee85b079c1c5a881ef4dc39166572cb73da0455c20c1c)
Gratuidade encerrada
16:15
16:15
A importância das contribuições científicas e de experiências nas Consultas Públicas: Resultados e reflexões
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fn8gqljp7ptleqkbzcblb3g8cr1w9%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074317Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D8f367915aba768ea0243b784203843afa7b189c5549c0d8447020bbcd3977bb2)
Gratuidade encerrada
16:30
16:30
Prescrever medicações não incorporadas ou não? Causas e consequências
Laura Murta Amaral
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fg86h845mp9jpmxnhsbulipxu6jet%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074317Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D01de9c1b4f0079d35c0806d45222acc2b60c1cfc42c5773e6c00ffa57ab4b092)
Gratuidade encerrada
16:45
16:45
Como a classe médica contribui com o advocacy em saúde?
Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flexpkdk411dohh9k1tt8nmbu92cq%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522abertura.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527abertura.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074317Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dbdeeb970940b54f12f8586b5371e05cbf31839da397a78a17891e64e8116aaf7)
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Gratuidade encerrada
14:35
14:35
Mesa 03: Novidades no cenário da fibrose cística
Dra. Mariana Camargo, Renato Fraietta, Dr. Fábio André Franke, Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fwmx8of4oaokbl8kggtylb64c6h4v%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074317Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D946c7ec706f7fcb2955e5f5abfe51e29a9349c176f3243b58a071c52b99213e1)
Gratuidade encerrada
14:40
14:40
Fertilidade: conversando sobre reprodução de homens e mulheres com fibrose cística
Renato Fraietta
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fkcmp4zky6z2ci7pqwm6pszk5vgxl%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074317Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D49661d86f2f65d66098299f34bfe36f6dff648d0f13132bc92fea415b6aa42fd)
Gratuidade encerrada
14:55
14:55
Pesquisa Clínica: o que está faltando para trazermos para o Brasil?
Dr. Fábio André Franke
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fahhmeaswxkaqkq6kkrpvwxbm9ly8%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074317Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D65be4cea8ea78d3ad648222302d44cb912ecb89fb702f77db1b8a257818e3ee8)
Gratuidade encerrada
15:10
15:10
Atualizações sobre Resistência antimicrobiana na Fibrose Cística
Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fgxxsawohib5xtacbtgmm2lgyjf2j%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074318Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dec6ea0083bd8bdb65816da9bfb6c58773f671688c09161bef09647aa8df88f76)
Gratuidade encerrada
16:10
16:10
Mesa 04: Novidades no tratamento da fibrose cística - o futuro
Cristiano Machado Silveira, Rodrigo Abensur Athanazio, Dr. Leonardo Araujo Pinto
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fmi6h1sztb9ffyzyj7i6iw5spdg6h%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074318Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D76e187560a208ee7b5b610450bd91ec05aff1fe94aa2bdb2ce64313ea21057a9)
Gratuidade encerrada
16:15
16:15
Genes não atendidos pelo moduladores: o presente e futuro
Rodrigo Abensur Athanazio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F5hmyq2ylj1jvaaf9t0w43l5xxskd%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074318Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D25a451d5905fb3bcca05c9ae46033ffa5b006ef032a8bbce3736eb6407c0356a)
Gratuidade encerrada
16:30
16:30
Relatos de Experiência Brasileiros sobre o uso das novas tecnologias
Dr. Leonardo Araujo Pinto
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Gratuidade encerrada
16:45
16:45
Horizonte Tecnológico: Quais as novidades para o tratamento da fibrose cística?
Cristiano Machado Silveira
AcessarPatrocinadores
Master
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